Patient: Page 16
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PharmaVoice Team/PharmaVoice
Speak Out
What do patients really want from pharma? Today, most of us have become digital natives—seamlessly integrating mobile experiences into our daily lives. Many of us are also patients and caregivers. This represents an opportunity for pharma to offer mobile-first approaches to engage healthcare cons...
By Hoss Sooudi • May 1, 2019 -
PharmaVoice Team/PharmaVoice
Letter from the Editor
The Patient Inside Us All… At some point in our lives we have been or will be a patient…and yet we are so much more. We are also parents, aunts, uncles, caregivers, in addition to the roles we embody as leaders in the healthcare ecosystem. We asked the patients interviewed for this second annual ...
By Taren Grom • April 1, 2019 -
Explore the Trendline➔
Stock via Getty Images
TrendlineClinical trial diversity
As pharma wises up to the fact that the current playbook for improving clinical trial diversity has yet to make a meaningful impact, the quest is on to refine that approach.
By PharmaVoice staff -
PharmaVoice Team/PharmaVoice
Last Word
From Patient to Advocate Donna Cryer, President and CEO of the Global Liver Institute, talks about how she channeled her personal experience as an IBD and liver transplant patient into professional advocacy. PV: Tell us about your journey as a patient. Cryer: This is the 25th anniversary of my li...
By Donna Cryer • April 1, 2019 -
PharmaVoice Team/PharmaVoice
Patients Are Waiting…
Patient-focused initiatives are taking hold throughout the industry from R&D through commercialization, yet there is still room for improvement. Progress is being made to include patient insights and perspectives throughout the life-sciences more holistically. Companies are engaging patients ...
By Taren Grom • April 1, 2019 -
PharmaVoice Team/PharmaVoice
Children on the Frontline: the Toll of Rare Diseases
Parents are the strongest advocates for their children suffering with rare diseases, pushing researchers, companies and regulatory authorities to do more to save their loved ones. For the 350 million people worldwide battling with a rare disease, the impact on their day-to-day lives is profound. ...
By Kim Ribbink • April 1, 2019 -
PharmaVoice Team/PharmaVoice
Patients and Regulatory Support
Regulators are working to make sure patients have a seat at the clinical trial table. The Food and Drug Administration has been instrumental in the movement toward patient-centric clinical trial initiatives and driving these initiatives forward is the future of trial development. In recent years,...
By Denise Myshko • April 1, 2019 -
PharmaVoice Team/PharmaVoice
The Caregiver Gap
Caregivers are often an integral part of the care team and are involved in everything from medication choice to adherence. Caregivers are significant players in the healthcare ecosystem and, for many individuals, a necessary part of managing an illness or chronic condition. Caregivers provide an ...
By Denise Myshko • April 1, 2019 -
PharmaVoice Team/PharmaVoice
Patient Journeys
Putting the patient at the center requires understanding the whole person, not just his or her illness. Telling a patient’s story through his or her odyssey can be a powerful message. By all accounts, mapping a patient journey is never a straight line leading from point A to point B, and requires...
By PharmaVoice Team • April 1, 2019 -
PharmaVoice Team/PharmaVoice
Red Zone: To Gain Competitive Advantage, Learn Your ABCDs
Understanding and staying engaged with patients throughout their treatment and wellness journey is a primary focus of the entire life sciences industry. The benefits are clear: • Patients’ trust in the therapy and its ecosystem grows • Longitudinal data on patient progress provides evidence for v...
By Sriraman Nagarajan • Jan. 1, 2019 -
PharmaVoice Team/PharmaVoice
Last Word
In Her Shoes: Understanding the Female Patient Experience Elizabeth Bolgiano, Executive VP, Chief Human Resources Officer at AMAG Pharmaceuticals, discusses the company’s efforts to imagine “walking a mile" in its female patients’ shoes as they seek care for sexual health-related conditions. PV: ...
By Elizabeth Bolgiano • Nov. 15, 2018 -
PharmaVoice Team/PharmaVoice
Entrepreneurs
Frank Powers For Raising the Creative Bar Title: Managing Partner Company: Elevate Healthcare Education: Bachelor of Science in Business and Finance, Mount St. Mary’s University; Master of Business Administration, Philadelphia University Family: Tara Leigh, he will forever be grateful for the unw...
By PharmaVoice Team • Aug. 1, 2018 -
PharmaVoice Team/PharmaVoice
Patient Advocates
Anne Quinn Young For Pushing MMRF’s Mission Forward Title: Senior VP, Marketing and Communications Company: Multiple Myeloma Research Foundation Education: BA, Dartmouth College; MPH, Mailman School of Public Health, Columbia University Family: Husband of 17 years, Brandon; daughters Keira, Lara,...
By PharmaVoice Team • Aug. 1, 2018 -
PharmaVoice Team/PharmaVoice
Speak Out
Understanding The Why Applying health psychology to deliver effective patient support As a health and clinical psychologist, I’ve spent the last ten years helping the healthcare industry address the self-management needs of patients living with long-term conditions. For the most part, this work h...
By Kate Perry • June 1, 2018 -
PharmaVoice Team/PharmaVoice
Letter from the Editor
Riding the AI Wave It would be hard to identify a hotter trend right now than artificial intelligence and machine learning — a trend 60 years in the making since John McCarthy coined the term AI while leading a Dartmouth Summer Research Project. Merriam-Webster defines AI as: a branch of computer...
By Taren Grom • May 1, 2018 -
PharmaVoice Team/PharmaVoice
HBA Rising Stars & Luminaries: Leadership and Vision
PharmaVOICE tapped the nearly 100 industry executives identified by their companies as HBA Rising Stars and Luminaries to identify the biggest trends they believe will impact the industry in the next few years. Top on their list are digital and technology solutions, disruption, and innovation. Th...
By PharmaVoice Team • May 1, 2018 -
PharmaVoice Team/PharmaVoice
Letter from the Editor
Getting personal There’s a pretty good chance that everyone reading this special issue — Patients’ Voices — is either a patient, a caregiver to a patient, or knows someone who has been diagnosed with a chronic or acute condition. But just because we are all patients or know a patient doesn’t mean...
By Taren Grom • April 1, 2018 -
PharmaVoice Team/PharmaVoice
Patients and Health Literacy
What people know about health and healthcare and what they do with that knowledge has a major impact on their health and well-being. When patients are given health information in a way they can understand, they tend to make better health decisions. Low health literacy, on the other hand, is a con...
By Denise Myshko • April 1, 2018 -
PharmaVoice Team/PharmaVoice
Patient Journeys And Storytelling
Real life patient stories started seeping into the pharma lexicon well over a decade ago, on both a commercial and research level. The industry began turning to end users to discover how to create better drug delivery processes, clinical trial protocols, and marketing efforts, as well as to accur...
By Robin Robinson • April 1, 2018 -
PharmaVoice Team/PharmaVoice
The Changing Role of Patient Advocacy
The role of patient advocacy is a broad one — from supporter, to sponsor, to campaigner, to spokesperson and beyond. Indeed, patient advocacy means different things to different stakeholders, says Keri McDonough, senior team leader, Biosector 2, a Syneos Health company. “When patient advocacy gro...
By Kim Ribbink • April 1, 2018 -
PharmaVoice Team/PharmaVoice
Executive Perspective: The Lens of Health Psychology
As chronic illness continues to dominate the healthcare landscape, more and more people are being charged with taking active roles in managing their condition and treatment. Laura Moore, Ed.D., CHES, Lead Health Psychology Specialist at Atlantis Healthcare, believes the field of health psychology...
By Laura Moore • April 1, 2018 -
PharmaVoice Team/PharmaVoice
Moving Beyond the "Beyond the Pill" Conversation
The pursuit of better outcomes from all sides of the healthcare equation is driving the creation of more and more digital treatments and supplemental services as drug companies strive to prove, and increase, the value of their drugs — to payers, physicians, and patients. The value-add of these di...
By Robin Robinson • March 1, 2018 -
PharmaVoice Team/PharmaVoice
Behavioral Economics
Have you ever made a decision — health or otherwise — and on reflection, you couldn’t be sure what drove you to make it? That’s called being human. It’s that characteristic — making decisions based on emotions or gut instinct rather than logic — that is at the heart of behavioral economics. To su...
By Robin Robinson • Feb. 1, 2018 -
PharmaVoice Team/PharmaVoice
How Well Do You Really Know Your Patients?
Why an outsourcing evolution builds better patient relationships Global Genes reports that therapy adherence in the rare disease space can vary from only 58% to 65%, a troubling statistic for our industry, and most importantly, the patients we serve. Manufacturers must be wondering, how well do w...
By Linda Newberry-Ferguson • Feb. 1, 2018 -
PharmaVoice Team/PharmaVoice
The Value of Online Support Groups in Rare Disease Communities - and the Role Pharma Marketers Can Play
Online support groups for patients and caregivers living with rare diseases have grown tremendously in number and size over the past 10 years. Often closed to the general public, these semi-private groups are usually started by one or two motivated individuals, then extend throughout the world to...
By Laurie Bartolomeo • Feb. 1, 2018 -
PharmaVoice Team/PharmaVoice
Commercialization Strategies in Rare Diseases
Agency Partners Simply Can’t Fake It. Over the course of my career working in pharmaceutical advertising, one of the most common refrains I’ve heard through the years from eager agency folks is: “We need to get into oncology or rare diseases." I have to admit that it’s a declaration that always m...
By David M. Paragamian • Feb. 1, 2018
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